KATIE GRACE POST OP of a LARGE VSD ClOSURE +PDA REPAIR + PULMONARY HYPERTENSION - DAY 4 UPDATE

We are up and then we are down. That is how it is. I've been frustrated that every time I leave, is the time that Katie Grace Hua Hua wakes up. Apparently she is so upset and panics and the nurses have to hold her down and give her more medication. Well, I finally realized that the reason she is so quiet and doesn't move a bit for hours and hours when I am here and then has these episodes when I am not, is that although she is "sedated", she is aware of my presence.

She is still intubated and sedated now on day 4. The Drs were able to wean her oxygen down to 80% and her Nitric Oxcide to 5% and she is tolerating that. This morning however has had some very rocky times. She has been waking a lot and then gagging and then getting upset and her stats go down a bit. Well they decided to clean her tube and change the tape, but didn't want her to move around a lot so they gave her some pain med and a temporary paralytic. She was not asleep all the way though and tears rolled down her face and I knew she was terrified to be paralyzed. Then after that she was still crying and not able to move still and her heart rate went up to 160. So she had to get more medications. I am just feeling so down this morning. I feel so helpless to watch her and not be able to help how she feels and how scared she is. She may have to endure this for several more days.