I wish, with all my heart, I could say the Hua Hua was doing wonderfully and that she was off the respirator and in my arms, but that is not the case. She is still sedated and intubated and will be for some time.
For those of you who are following along and praying I will give some specifics and ask you to pray with all of your hearts.
A couple of concerns for PRAYER:
1)Liquid in Lungs:
Everyday they take an X-ray of her lungs in the AM. Katie Grace Hua Hua has had a light shadow in her right lung and it is growing. They have her on antibiotics, so if it is pneumonia, they are working on it already. They believe it could be or it is just some gooey junk collecting that gets by the breathing tube and is not get sucked out when the suck it out. They are going to palpitate her lungs today by thumping hard on her on the chest to get it moving. I doubt that will be comfortable after having her chest wired shut. :( Think of how tender broken bones are? They are also going to do a sonogram to look at it and see if they can put at chest tube back in and into the lung and drain the stuff out. This should help her OXYGEN SATS (the number we watch continuously).
2)Calm Her Fears:
Also, even thought they have her on many sedation drugs, she continues to wake up and try to get up. I knew she would do that. This child has abandonment fears. She will claw her way out of the deepest sedation to get to mom. She PANICS. When she does get upset and agitated, OXYGEN SATS go down. They take awhile to go back up.
3)Trying Another Medication in Drip to get her off Ventilator:
Yesterday afternoon and into evening, her SATS lowered a little, so they dialed Oxygen back up to 85% and Nitric Oxide back up to 20%. Not the direction she needs to go in, in order to get off of the ventilator. So they are trying a Pulmonary Hypertension medication today in a drip to see if it is effective so that they can get her of the N.O. and off the Vent soon.
There it is. Our precious little, silly, happy, munchkin needs a touch from God today.
I keep praying that the Holy Spirit breaths His BREATH into her which is perfect and healthy and would bring health to her lungs.
Prayed those prayers and will keep at it.
ReplyDeleteOh My gosh Annie! I went out of town on Thursday and had no idea any of this was going on. My heart goes out to you all and especially little Katie Grace. I will continue to pray quick healing for her. Stay strong you are apparently a very key factor in her recovery. God is with you.
ReplyDeletePraying with you. I found your blog through Vicky's blog and my son from Hong Kong had similar heart issues (he also has Down syndrome) so I have been drawn to pray for your sweet girl and for you.
ReplyDeletePRAYING continually for you all, and especially for healing for Katie Grace! I also Pray that you will feel God's presence like a hug from heaven in the midst of your turmoil. Wish i were closer and could stop by and give you a hug.
ReplyDeletePraying and praying, Annie. Vicky posted a prayer request for you and Hue Hua on her blog and I linked to it on my blog, so many people Katie Grace doesn't even know are praying for her right this minute. God answers the prayers of the faithful, Annie. He is listening to us now.
ReplyDeleteContinuing to pray, Annie!
ReplyDeleteoh I was so hoping to hear that she was the star patient for bouncing right back. Our thoguths are with you all, hoping to hear great news soon.
ReplyDeleteAnnie, I'm praying and believing God for a complete and total healing for Hau Hau! May our Lord and Savior renew your body with peace and strength!
ReplyDeleteSaw your post on the China Heart Group. Praying for Hua Hua and you. Peace and healing and comfort. Praying her body will adjust and accept the new heart config and she will NOT be afraid any more.
ReplyDeleteWhich Hospital, again? Praying for each of you.
ReplyDeletePraying for your precious Katie Grace!!
ReplyDeleteThank you for the updates. We are praying for Katie Grace. I am so sorry it has been so rough. Looking forward and expecting a great update soon. ((((hugs))))
ReplyDeleteAnnie
ReplyDeletePraying for Katie Grace here in NY!!!
Kathie
Praying for all of you!
ReplyDeleteI am praying for her like she is mine. I've been in your shoes and know how heavy the world is on your shoulders. Our God is a great God. I have faith that she is healed. Love to your whole family.
ReplyDelete