The Crew

The Crew
Christina, Matthew, Joshua and Katie Grace XiHua

Thursday, March 29, 2012


Hua Hua with her favorite Blanky and her special Minnie

Before I tell you her stats, let me tell you the sweetest thing! I brought her favorite pink blanky from home. The one Lolli made her that is silky on one side and satin on the other. Well, she woke up a few minutes ago, (oh and by the way, whenever I have said "woke up" that basically means moving with eyes closed or maybe open slightly for a brief flutter), and I put her blanket on her and said here is your blanky from home, it's your favorite, isn't it? And she nodded her head! That is the only time I have received a certain response from her as of yet during this. She really does hear a lot more than we think! Oh my heart.

Just a quick update tonight in case anyone is awake and checking in. Of course I am awake and should be sleeping.

I want to let you know that Katie Grace Hua Hua is being weaned of her sedatives tonight little by little. She should be off of most by 6AM. Then they will be prepared to attempt to extubate her sometime after that. They want to make sure she is awake and able to cry and get the gunk out when they do.

They have the dial down to 12 breaths per minute on the oxygen now, she is breathing at around 25 breaths per minute, so she is breathing over half now, which indicates she is ready to take over.

She is at 65% oxygen. They will leave it until extubation and then switch her to a canulla nose feed when she is awake.

Pray all goes well, it can sometime be a dramatic change as they stop all the drips and take them off after being on for so many days. Pray this really happens! Thank you for your prayers! So many people everywhere, praying for this little girl. Thank you.

For every one that asketh, receiveth; and he that seeketh,
findeth; and to him that knocketh, it shall be opened.
Matthew 8:8


  1. Sounding SO good. We are praying for her weaning and her little body to go through no withdrawal or hardship, and of course her lungs to amaze everyone tomorrow!!! Thank you for the late night update! Prayers ascend!

  2. Aww.. she looks so vulnerable in that big bed with all those tubes... My heart goes out to your very BRAVE little girl!! And I am praying praying that she will be home soon, all better!!
    Love & Kisses from South Africa!

  3. Progress is everything. Praying for your sweet girl.

  4. Katie Grace was the first thing on my mind this morning. Praying for her and you early this morning. Keep the updates coming !

  5. Such good news! Keeping Katie Grace close in prayer again today.

  6. Just got through praying for Katie, and you all! May God and His angels surround you today! May His healing Hand be upon little Hua Hua! Hug Hug!!

  7. continuing to pray in Texas. So glad to hear good news.

  8. Yes!!! Thank You Lord! Our Lil Miss was also more awake than we realized under sedation. She managed to wake up enough to scream and holler everytime we left to go to the RMH (Ronald McDonald House) and they would have to give her more meds. I HATED it but we were not allowed to stay the night in the CPICU. This is all very good news. Thanks for keeping us posted. My children and I are praying faithfully for your little treasure!!

  9. Praying, praying, praying!!!!

    Come on Katie can do it baby girl!!! We are lifting you up in prayer sweet love!

    I was so touched by her head nod...I can't wait to see those eyes OPEN! :)

    Love and blessings,


Many hungry children near the boarder of Myanmar and Thailand-click on photo