THANK YOU FOR YOUR PRAYERS! IF YOU WOULD BE SO KIND TO PRAY THIS TODAY - DAY 6 POST-OP

Do you ever get that feeling of being so scared that you tremble inside and your legs and stomach feel melty?

That is the feeling I get on many occasions over the past few days. Don't worry. I don't have it constantly. Sometimes I have great hope and courage. Many times I am just sitting here reading or on the computer and absolutely nothing is happening. But then, it sweeps through...

Katie Grace Hua Hua will wake up and be so agitated and try to get up or put her hands toward her face (to pull at those tubes) even thought her hands are tied to the sides of the bed, she will kick her little legs in anger, she will look at me with fear in her eyes, and then she will start to try and expel the tube in her throat and her face will turn red, and her body will convulse as she coughs with no sound, and all her stats will go up when they should be down, and down when they should be up, and the dingers will go off.

I try to calm her.

I get that feeling.

Then the nurses will go ask the Dr. if they can give her more sedation because they are in awe when they discuss how much she is on and that she would even be able to awake under such sedation, and I think, you don't know who this little, powerful, scared girl is who would claw her way out of the deepest sedation to get to her mama, and they will get permission, and fill her tiny body with more drugs.

I stand by and watch.

I get that feeling.

I will see her stats are good and her Oxygen stats are at 93 or higher and I will feel joy. Then I will wake up from a nap or come back from a lunch and see her stats at 89 and know she will not get closer to that tube out today.

I will the number up, with all my might, but it doesn't do what I wish.

I get that feeling.

Katie Grace Hua Hua is up and down as each day passes. Today, the Oxygen fed to her is at 90%. It needs to be at 30%-40% for her to take over and in order for them to take her off the vent. They will not be lowering it today, but will tomorrow.

For those of you dear friends praying, let me talk about yesterday's prayers:

The liquid in her lungs was blood mixed with just fluid. It is not Pneumonia! It was most likely due to a small bleed from a chest line that came out and bleed a little on the inside at the opening. The lung has been drained and the Xray is clear! Thank you!!

If you will pray for today:

1)Calm Her Fears:

She is waking up less because she is so sedated, but I would like and the Dr would like too that they will not have to use more sedation and if she does wake up , somehow we can calm her and let her know she is okay. How to do that with a 4 year old that doesn't understand what is going on? I don't know, BUT GOD DOES, and she doesn't need all of these heavy sedatives to this extreme.

2)New Medication is Working -Let's Get Her Off The Nitric Oxide:

The medication they are trying in the drip seems to be lowering her Pulmonary Hypertension pressure. They are trying to get her off the Nitric Oxide throughout today and tonight. That is half the battle with the vent. It is at 10 and we need it at 0.

3)Albuterol is effective, pray for her heart rate:

They gave her some Albuterol in her vent today because she had some "rattling" in her chest. It was very effective (she has used it at home) to open up her airways and brought her Oxygen Sats up to 98%! But caused her heart rate to go up to 160-180 for about 40 min, yikes. Very high and she was jumping out of her bed. Pray she can handle that. She needs those high Sats, but not high heart rate.

God Bless you all!!

Then your light shall break forth like the dawn,
and healing shall spring up quickly.
Isaiah 58:8