The Crew

The Crew
Christina, Matthew, Joshua and Katie Grace XiHua

Wednesday, March 28, 2012

MELTY, MELTY, MELTY - We had an Emergency - Day 7 Post -Op

Just to lighten the mood, I thought I'd post this pic of Hua Hua after she colored on her face with a marker. Just look at her face after I said, "Hua Hua! What did you do??" Oh we laughed about this!

Ok, so remember yesterday when I talked about that feeling I get when I am SO scared that I tremble inside and my stomach and legs feel all MELTY?

Well, THE MELTIES struck again.


Let me first say that Katie Grace Hua Hua is okay this morning and her numbers are good. So that we are so thankful for.

Now, back to THE MELTIES.

We had 3 MELTY EVENTS. 2 durning the night and the GRAND FINALY of MELTIES this morning.

At around 1:30 AM, Hua Hua woke up and seemed to be in pain. She grimaced and made a cry face. (she can't actually cry with all her tubes). So the nurse gave her morphine and adivan. Then she took her temp and it was 102.3F (I found out later it was 103.7F :( an hour later). Then Hua Hua began to twitch and jitter.


Well I had not seen her do this yet, in this setting or ever. I told the nurse to come and look at her. We weren't sure what it was. I suggested she was having a reaction to the meds. She thought the fever. Well, it wasn't shivering and she didn't have goosebumbs on her arms like you do when you get the chills w/fever, she was jerking. So the nurse woke up the Dr and he came up and said it was the fever. They gave her Tylenol and started back on antibiotics.

I fell back asleep and awhile later the dingers go off and Respitory comes in to suction her vent tube. She notices that there is a lot of goo in Hua's chest, so she has to squirt saline down the breathing tube, push the line down and suction the goo back up. She did this 3 times. This was awful for Hua Hua.

Again came THE MELTIES

SOOO... at 5:30 AM, her dingers go off, and I am up on the 1st ding. I look at her and see she is moving her mouth a lot and there are bubbles coming out. I ask someone walking by to get my nurse quick and the tech looks in and sees that the Hua Hua has extubated herself!?? Well my heart just dropped to the floor. She has too much sedation to breath for herself!!!


Every Dr and nurse on the floor rushed to her room. They began breathing for her with a hand bag and for the next 40 minutes tried to reintubate her, while she was still awake :(. They tried twice but not successfully. So they called in the anesthesiologist from the ER and she got it in. Then they had a hard time getting one of her nose tubes in. Meanwhile they are still using the hand bag ventilator. They were successful and she did not ever lose too much oxygen.


Your prayers have brought me peace and encouragement everyday. That is the honest truth!

Yesterday's prayers answered:

She wakes up less and less fearful, although there are still some sad moments, she is more like a dazed wiggle worm the past few times. Thank you for covering her in prayer for this.

New medication is working well, she is going to be of N.O. today hopefully!

Albuterol is effective. The Dr said to not worry that it makes her heart rate go way up for that time.

Please pray for today:

1)Her Medications for pain and sedation:
They believe that either she moved her central line out enough to have her not absorb all of her medication today or she is getting used to it. But each time she got medication today, she has started twitching, jumpy, shaky and waking 30 min later. Like she is coming off something. Please pray they they decide the best avenue for her.

2)Her Fever:
Pray the find the source of her fever. They have her on antibiotics again which is awesome. One theory is that her breathing tube could have gotten a little infected. Well since she pulled it out this morning, maybe it was meant to be.

3)Her numbers are doing well last night and today. They are thinking they might be able to extubate by Friday. Pray she doesn't have any setbacks and can wean off everything. She is down to 4% Nitric Oxide! Just 3 to go. She is still at 90% oxygen and will be taken down by 10s to 40%.

Heal me, O Lord and I shall be healed; save me,
and I shall be saved; for thou art my praise.
Jeremiah 17:14


  1. Prayed those prayers and also prayed for strength for you.

  2. Annie you strength is amazing!! You are wonder woman, what an awesome mommy you are . My thought and prayers are always with you!

  3. Oh My......i bet you feel like years were shaved off your life in a moment:( How scary!!!! We are praying daily....multiple times daily....for this precious baby, and her family! Cute little blue face;)

    The Lord is my shepherd;
    I shall not want.
    He makes me to lie down in green pastures;
    He leads me beside the still waters.
    He restores my soul;
    He leads me in the paths of righteousness
    For His name's sake.
    Yea though I walk through the valley of the shadow of death,
    I will fear no evil:
    For You are with me:
    Thy rod and thy staff they comfort me.
    You Prepare a table before me in the prescence of my enemies;
    You anoint my head with oil;
    My cup runs over.
    Surely goodness and mercy shall follow me
    All the days of my life:
    And I will dwell in the house of the Lord Forever.
    PS 23

  4. Visiting from Robin.. Praying your specific requests for your baby girl... I am so sorry that she is struggling.. What a blessing that you are there enduring each moment, scary and victorious, with her! Lifting Hua Hua up in Minneapolis!


  5. Oh my goodness. I would have melted too. I'm still here praying for your entire family.

  6. Sorry that last night was so scary and difficult for both of you. Oh Annie. My heart goes out to you. I do find it a good sign that you were able to lead with the cute picture after such a traumatic series of events. You all are in my thoughts and prayers.

  7. Annie, I am so sorry. Continuing to pray!

  8. Praying for your baby girl here in Texas.

  9. Annie:
    Still praying for your little Warrior Princess Hua Hua. Remember that after heart surgery this is not uncommon to have these ups and downs. I know how scared you are but and Katie Grace are covered in prayers. Hugs from our family to yours.


  10. Thinking of you and your girl. Prayers are com ing from NY!!!

  11. Oh Annie....I can not imagine how scary that had to be for your mama heart!!! HUGS!!!

    Thank you for allowing us to pray specifically for your Katie Grace!

    I will be praying as I sew late into the night...and first thing when I open my eyes in the morning.

    Praying that you are both able to rest peacefully and that there are NO DINGERS tonight and NO MELTIES!!!

    Love and blessings,

    Isaiah 41:10 "Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand."

  12. OMG Annie, I so feel for you!! These days must be so hard on you and your family!! I wish I could do more than pray, you feel so helpless when your baby is suffering and the only thing is wish for is her complete healing!! Hua Hua and you are in my prayers!!
    My heart is heavy after reading your blog post but you cheered me up with this adorable picture of her!!
    Love, M xx

  13. Praying for your little girl and praying for strength for you. HUGS

  14. Oh, Annie! I have been praying for you at random times as God brings you to mind. I know with all of us praying, God is covering you during all of your "meltie times"--He's great like that!! I have been praying that the peace of God which passes all understanding will guard your heart and mind in Christ Jesus. He is the Prince of Peace!! Looking forward to great news in the next couple of days! Love you!

  15. Annie, this is so hard to read. I share your pain, and am sending more prayers than I can count. Thank you for taking the time to share with us, so we can send you all the support we can through our love and prayers. Lots of love and hugs!!

  16. Annie, Do you have an update? Praying for Katie Grace!


Many hungry children near the boarder of Myanmar and Thailand-click on photo