The Crew

The Crew
Christina, Matthew, Joshua and Katie Grace XiHua

Tuesday, April 17, 2012

EASTER PICS - Home from hospital 10 days.


Hi! Sorry I was off for a bit, but we took a quick break and rest when we returned home, as you can imagine!

Katie Grace Hua Hua is doing great! She is running around and playing just as if nothing ever happened. It is hard to keep her from being too active as the instructions given ask!

She doesn't think anything of her long incision and chest tube incisions. They are just part of her and she really doesn't mind them at all. They are still slightly scabbed but never bruised. These incisions should heal well and fade to fine lines.

She is still weaning off several meds, about 5 days left of that, and then she will remain on the Pulmonary Hypertension medication for about 6 months.

We have been back to the hospital 2 times. Once last week, just a few days after discharge for an echo to look at the cardiac effusion (liquid in the heart), which was diminishing quite well and for a wound check. Then we were back again yesterday, only because I had a job interview. :) I brought the 2 girls and Christina took Hua Hua to lunch while I interviewed. Then we went up to PCICU to visit our nurses and Dr.s! Hua Hua's favorite nurse and true love, Collin, was there, so that was quite an exciting visit. ; )

Here are some photos from Easter. That was the day after we arrived home. Katie Grace was a bit too medicated to go to church, but Christina dressed her in her Easter dress and took pics of the 2 littles. :)
















6 comments:

  1. It is so nice to see Katie Grace with that big smile on her face. So happy that she is not bothered by her long incision. She will be able to tell some wonderful stories when she gets older about that line. Wishing her and your entire family continued health.

    ReplyDelete
  2. Precious! So happy to see her progress and smile! What an Easter gift to have her home!

    ReplyDelete
  3. She looks great. Glad to hear you she is just about done with most of her medicines. Hmmm, job interview... GOOD LUCK!

    ReplyDelete
  4. It's wonderful to see Katie Grace doing so well! I just love her sweet dress!

    ReplyDelete
  5. I'm SO glad to see her home and smiling :) Isn't it amazing how quickly children heal? It just amazes me every time I see it :)

    PS: Good luck on the job interview!

    ReplyDelete
  6. so nice to see her out and about being a kid again!
    job interview but I was just telling Maya about how cool you are working at Disney World!!

    ReplyDelete

Many hungry children near the boarder of Myanmar and Thailand-click on photo