Monday, April 2, 2012
IS THIS THE FACE YOU WERE HOPING TO SEE????? IT SURE IS THE ONE I WAS HOPING FOR!!!!
Physical Therapist, Amber, getting Katie Grace to the side of the bed sitting up straight for the first time with very little support and to do some 'activities" while she sits.
Katie Grace sitting in the PT chair enjoying some time OUT of that bed, reading a book. Still a little woozy sometimes during the day, as you can see by the eyes, but not all day! Sometimes she was much more clear. :)
What a sight these pics! Don't let the smile and the quiet moment with a book fool you completely, the last 48 hours or so since I had posted last have been quite a whirlwind of ups and downs and also very active.
The good news is, Katie Grace Hua Hua is OFF THE VENTILATOR FOR GOOD and making great progress!! Praise God of Heaven and Earth for His Goodness and Mercy!!!
She spent the weekend struggling coming off the strong sedatives and painkillers. Crying and crying quietly, shaking, jittering, fever and scratching her itchy self. Now don't get me wrong, they are giving her something to help her come down, but tying to figure out the right times, doses and if she doesn't spit it out made for a tiring couple of days.
Now she will be on a med to help her withdrawal from those meds and then she will need to be weaned off of that med. It is a very trying circle for her. This will take at least 4 more days if not more.
She is down to the 1 liter setting on the oxygen canulla, where she was set at 5 liters after coming off the vent. They have dialed her down each day. They hope to take her off the canulla tomorrow!
She is still on the heart med for one more day, and the sleep assistance for 2 more days.
She is off the blood pressure medicine and is taking a Pulmonary Hypertension medicine that works on her lung pressure which in turn keeps her BP down. She will probably go home with this med for awhile.
She is eating a regular diet! She had scrambled eggs today, grapes, chicken noodle soup, jello, and more!
The physical therapist was able to get her to sit up unassisted and do some puzzles, then stand with assistance. She also spent an hour in the PT chair.
All in all, she has progressed by leaps and bounds thanks to God's Mercy and the kindness of your prayers and her amazing inner strength and an amazing team of Drs and nurses, which I will post more about tomorrow!
It was just a few days ago that we were told this will probably be quite some time on the ventilator because she was struggling, then suddenly she held strong and they said, we're extubating! And that was it!
That turn around was nothing short of amazing.