AN ATTEMPTED DISCHARGE WITH JUST ANOTHER HURDLE BUT STILL DOING GREAT!

I was told this morning at rounds that Katie Grace Hua Hua could be discharged today, pending getting her medications filled and scheduled properly by the end of the day! Well I was pretty excited about that so I began packing her things in the room. (you can collect a lot of things, toys, gifts, projects, etc after a couple of weeks!)

Physical Therapy came in to do some exercises and then we attempted to take her for a "walk". Well she just sort of leaned and walked to the left and sort of shuffled her little feet along and swerved back and forth, knees wobbling. Dr. Piggott was watching from across the way and he came over to talk to me when we got back and he said he was concerned about sending her home with that much medication still in her system. They have to give me a VERY slow, 3 week wean plan from the Methadone and Adivan at home, and she would probably be like this for a good portion of that if they wean this slowly. He said we would have to keep her from falling for many days and not let her get up and just go on her own. Or we could stay a few extra days and they will do a controlled, yet very quick wean from these drugs and get most of them down to a minimum so we could go home with a more stable walker. I decided to go with his suggestion, because I knew when we got home, it would be impossible to keep her down for a couple weeks when she would want to chase after her brothers. Here she is already in her bed and we can do this now. So here we are for a few more days.

So, the "power wean" is on. Please pray that she can handle it and pray that she will have minimal withdrawal symptoms.

Also, pray for her emotions. She has digressed in many ways even though her spirits seem to be more up today on the surface. I will post more about that tomorrow. She doesn't want to "go home' now, she very frightened and somewhat detached, among other things. She is worried and confused.

"Child Life" had craft day in their area and the kids got to attend and make Easter Bunny crafts and candy necklaces.

Look at what I made, Mama. She still looks a little woozy and well, she is. The bunny sort of looks like how she feels, I just noticed! :) Bless their little hearts!

Whew! Back in the "comfort zone" of her hospital bed exhausted from those crafts. :)

Daddy came and they played catch with the ball. Great strengthening therapy and fun! Kick it!

Now throw it!

Guess who came for a visit?? Her brothers! She was so excited they were coming, she hid under her covers and popped out giggling and squealing to surprise them! Boy were they actually surprised because the last times they visited, she would never wake up and had more things hooked up to her.

Let's play for awhile!

We will read you a book and the teddy bear responds to your voice!

We will do some puzzles

We will snuggle for a little bit! She loves that quilt that a quilting ministry made for the kids in the hospital and my friend Molly, who is the Guest Service Manager, sent it up. What a blessing.

Well, one last goodbye. She is sad they are leaving. "Do you want to come home soon Hua Hua??" She gets a very worried face and shakes her head "no". Poor baby. She is so uncertain about everything. This visit did her heart good though.